I have had Idiopathic intracranial hypertension, now lose vision, doctors don’t know why?

Idiopathic intracranial hypertension?
I have had IIH in 2014 been on meds, number of lumber punctures and surgery but have not been successful. Again same in 2015 and 2016. I get severe headaches, eye swelling, affects my left side more. I lose vision at times, total black out, weakness in legs and dizziness. Drs do not know what is causing this and why it comes, unsure of what is actually going on. These problems are continuous all day everyday for more then 8 weeks