I have struggled with intermittent pain for years now. Usually deciding that I’m just being a baby and popping a few ibuprofen. (About 800mg five or more times a week, due to pain or headaches) The pain usually begins in/near joints and generally radiates out. So sometimes my whole arm will ache from shoulder to elbow to palm and sometimes it’s my legs and hips. I also have lower back pain. Most of these pains tend to begin at the end of the day. Though I wake up stiff and in pain in the morning for up to a couple hours.
Two years ago my jaw, which was sore and stiff sometimes, locked up and wouldn’t relax for months, it was horribly painful and very scary. I noticed my face was very hot, though never looked swollen or red. I was unable to open my mouth farther than halfway. I got some dental work done and worked with a TMJ specialist, who provided me with a very expensive occlusal guard(which did not help over months and months) Eventually my jaw loosened and now it flares up a few times a month, but doesn’t seem to stick around as long.
Two months ago my right eye suddenly began to ache and a thick cloudy fog fell over my vision. I saw an opthalmologist who diagnosed uveitis and gave me steroid drops, which helped almost immediately. He suggested I have some blood work done.
My PCP found elevated c-reactive protein and antinuclear antibodies? And referred me to a rheumatologist.
Today was my appointment. (I should mention a pretty light pain day) The doctor looked me over and really only seemed interested in my low back pain. She ultimately decided I probably have inflammation and probably won’t find a cause, so she gave me humira and sent me on my way.
I’m feeling a little lost and confused at her lack of interest and sudden drug prescription. Am I crazy? I realize this is probably weird to follow and it’s very condensed. I had just expected her to be more interested in my symptoms and finding a cause. Are there any suggestions for me to move forward?
General Information: Headaches
Hard time focusing
Body tenses and heats up when pain stiffness occurs in Joints
Skin pain – burning sensitive to touch randomly
Tingling and numbness in back and shoulders and legs.
Pins and needles.
Cold hands and feet
Leg pain – radiating
Weird feeling in ear
Lower back pain in morning
Eye inflammation and pain
Writhing discomfort in bed
Difficulty falling asleep
PCOS (diagnosed 2012)