I have struggled with intermittent pain for years now?

I have struggled with intermittent pain for years now. Usually deciding that I’m just being a baby and popping a few ibuprofen. (About 800mg five or more times a week, due to pain or headaches) The pain usually begins in/near joints and generally radiates out. So sometimes my whole arm will ache from shoulder to elbow to palm and sometimes it’s my legs and hips. I also have lower back pain. Most of these pains tend to begin at the end of the day. Though I wake up stiff and in pain in the morning for up to a couple hours.
Two years ago my jaw, which was sore and stiff sometimes, locked up and wouldn’t relax for months, it was horribly painful and very scary. I noticed my face was very hot, though never looked swollen or red. I was unable to open my mouth farther than halfway. I got some dental work done and worked with a TMJ specialist, who provided me with a very expensive occlusal guard(which did not help over months and months) Eventually my jaw loosened and now it flares up a few times a month, but doesn’t seem to stick around as long.
Two months ago my right eye suddenly began to ache and a thick cloudy fog fell over my vision. I saw an opthalmologist who diagnosed uveitis and gave me steroid drops, which helped almost immediately. He suggested I have some blood work done.
My PCP found elevated c-reactive protein and antinuclear antibodies? And referred me to a rheumatologist.
Today was my appointment. (I should mention a pretty light pain day) The doctor looked me over and really only seemed interested in my low back pain. She ultimately decided I probably have inflammation and probably won’t find a cause, so she gave me humira and sent me on my way.
I’m feeling a little lost and confused at her lack of interest and sudden drug prescription. Am I crazy? I realize this is probably weird to follow and it’s very condensed. I had just expected her to be more interested in my symptoms and finding a cause. Are there any suggestions for me to move forward?

Age: 29
Female
Medications: Ibuprofen
Yes
General Information: Headaches
Fatigue
Hard time focusing
Hot flashes
Body tenses and heats up when pain stiffness occurs in Joints
Skin pain – burning sensitive to touch randomly
Tingling and numbness in back and shoulders and legs.
Pins and needles.
Shoulder pain
Elbow pain
Wrist pain
Hip pain
Cold hands and feet
Knee pain
Leg pain – radiating
TMD
Weird feeling in ear
Dizziness
Lower back pain in morning
Eye inflammation and pain
(stuck pupil)
Writhing discomfort in bed
Depression(diagnosed 2008)
G.A.D.(diagnosed 2013)
Sleep disturbance
Difficulty falling asleep
PCOS (diagnosed 2012)

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2 Answers on "I have struggled with intermittent pain for years now?"

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Dr. Deepak Patel
Member
Dr. Deepak Patel
Hello. You indicate several varied and different symptoms. Difficult to pinpoint one condition in particular which may be the cause. Best approach is to establish some possible diseases which may cause several, varied and general symptoms such as yours and work with a process of elimination. Guillain-Barré Syndrome, Chronic inflammatory demyelinating polyneuropathy and Fibromyalgia should be the first to be investigated. They all cause some if not many of the symptoms you indicate. Testing may include: Electromyography, NCS Nerve conduction studies, Spinal tap (lumbar puncture) cerebrospinal fluid (CSF) examination , tender points evaluation, and nerve biopsy. Find a Doctor that… Read more »
Dr.Honey
Member
Dr.Honey

Hi.
Your symptoms are pointing towards problem with the nervous system that can be either central or peripheral nervous system. CIDP or Chronic Inflammatory Demyelinating Polyneuropathy can be suspected.
You should consult a Neurologist and get evaluated and investgations like an MRI of brain and spine should be done followed by CSF examination, nerve conduction velocity, EMG, CBC, serum electrolyte etc for confirmation of the exact cause..
Also start doing meditation and yoga to control anxiety.
Take light meals, multivitamins and drink plenty of water.
Take sufficient rest.

Hope this helps..

Regards.