I suffer from olfactory hallucination (phantosmia) for over 20yrs?

Hi, I’m (…), 49yrs old. I have been having really strong smells olfactory hallucination (phantosmia) for over 20yrs.had a scan in 96 which showed only frontal lobe damage and it was left at that. A few years ago had my eyes checked and had another scan which showed nothing, not even frontal lobe damage.. weird.. was put on epilepsy meds in case it was that but I became elergic to 2 types of the meds was taken off them and that was that. It frustrates me nothing can be found wrong.. I feel I’m not believed or I’m looked at as a hypocondriact.. but it’s real and when it happens it’s really strong and I find it hard to breath when it happens. What is happening? Why does 1scan show 1 thing than on another scan it shows nothing? Please help. Thankyou