My 1 month old daughter has a congenital heart disease and needs heart surgery, can it wait one year?

My 1 month old daughter has a congenital heart disease named – transposition of great arteries with vsd.
I bring her to a govt. Hosp. Doctors put her on oxygen for two weeks. Now from last two weeks they had removed her oxygen and now she is breathing well. Now we bring her back home she looks normal but some time her lips, ears, hands and feet toes get blue.
She is breathing well, sleeping well. Her mother feeding her regularly. She seems perfect she only cries when she is hungry or when her body exposed to air. While crying she got too much blue.
Doctors said it’s not possible to do her heart surgery bcoz she is too young. They tried too do angioplasty but didn’t succeed bcoz her veins are too thin. Doctors said let her grow a bit like up to 1 year. After it will be safe to do her surgery. Other wise bring her to any other country (which i cannot afford).
I just want to ask that Is it ok to keep her like this for one year without any treatment?
Please give me the suggestion that what should i do now
(please excuse me for my poor English)

Dr Ahmed Fawzy
Member
Dr Ahmed Fawzy

Hi
My opinion keep close attention to her skin colors , the vsd Will help her be relatively okay for the first year, however, if there is a chance to do the great arteries repository surgery the sooner the better
Good Luck

Dr. Arti Sharma
Member
Dr. Arti Sharma

Hi.I understand your concern.You need to get your baby operated by 3 months of age.It is best to not delay it because once pulmonaty vascular resistance increases it will become difficult to operete her.Moreiver it will also prevent complications like pulmonary hypertension, arrthymias and congestive heart failure. Take care and keep me posted!

Dr. Ayman Darrag
Member
Dr. Ayman Darrag

Hi,
I am so sorry for your infant, generally the presence of TGA with VSD is better for life expectancy which may reach up to 22 months or sometimes adulthood without major problems, however for better treatment it should be operated before 9-12 months as early as you can, so keep monitoring her color and always aware of the blood oxygen concentration from time to time until the earliest the doctors can operate..

wpDiscuz